Helpful resources – internet sites and publications

Australian internet sites:

1. www.lifeanddeath.org
   –Australia’s National Community Education Initiative – includes stories and practical information for the entire community
2. www.caresearch.com.au
   – Australia’s palliative care knowledge network includes latest information for patients and families, health care providers and researchers
3. www.livingcaringworking.com
   – Australian resources and information designed for people dealing with the impact of life limiting illness, dying, death and bereavement as patients, families, carers and colleagues in the workplace
4. www.palliativecare.org.au
   – the website for Palliative Care Australia, the peak body for end of life and palliative care – includes information about palliative care services, national projects and initiatives, policy and advocacy etc, and an opportunity to join the PCA Connect mailing list
5. www.foundation.palliativecare.org.au
   – the Australian Palliative Care Foundation, which provides grants for palliative care research and education each year
6. www.conlog.com.au/palliativecare2009
   - the official website of the Together! Cultural connections for quality care at the end of life international palliative care conference, planned for Perth 24-27 September 2009
7. www.pilotlight.org.au
   – Pilotlight is an Australian not-for-profit organisation committed to igniting social change, and publisher of the EXCELLENT book:  ‘Dying to know – Bringing death to life’
8. www.worldday.org
   – the website for International Hospice Palliative Care Day, held in early October each year
9. www.pcna.org.au
   – website for Palliative Care Nurses Australia
10. www.anzspm.org.au
    – website for the Australian and New Zealand Society of Palliative Medicine
11. www.carerswa.asn.au
    – Carers WA:  the not-for-profit organisation dedicated to improving the lives of Western Australian carers
12. www.hconc.org.au
    – The Health Consumers’ Council of WA – the independent body which brings a different and unique perspective to matters of health and public policy in WA
13. www.cotawa.asn.au
    – Council On The Ageing WA – the peak non-profit seniors’ organisation in WA
14. www.cancerwa.asn.au
    - the Cancer Council WA is the leading non-government advocacy and action cancer charity in WA
15. www.alzheimers.asn.au
    – provides support, information, counselling, education and respite services for people dealing with the challenges of dementia throughout Western Australia
16. www.mndawa.asn.au
    – the Motor Neurone Disease Association of Western Australia
17. www.acswa.org.au
    – Aged Care Services WA – the peak body for not-for-profit residential and community-based aged care services
18. www.healthnetworks.health.wa.gov.au
    - the Western Australian Palliative Care Network is part of the Department of Health - their principle role is collaborative health care planning for the whole community
19. www.wa.ahda.asn.au
    - the Australian Huntington's Disease Association WA provides information about HD and support for those affected by this inherited condition

International websites:

1. www.hospicecare.org
   – the International Association for Hospice and Palliative Care
2. www.aphn.org
   – the Asia Pacific Hospice Palliative Care Network
3. www.nhpco.org
   – the National Hospice and Palliative Care Organisation (USA)
4. www.chpca.net
   – the Canadian Hospice and Palliative Care Association – website in French and English
5. www.caringinfo.org
   – a wide range of free resources about end of life care (USA)
6. www.ncpc.org.uk
   - the National Council for Palliative Care (Great Britain)

Publications

• Palliative Caring at Home – free booklet about supporting a person at the end of life in the community – tailored for Western Australia. Click here to download your copy (April 2010, 33 pages 275Kb), call our office on 1300 551 704, or email pcwainc@palliativecarewa.asn.au to request your free copy.
  
  
• Palliative Care Medicine and Symptom Guide - published by the WA Cancer and Palliative Care Network (part of the Department of Health) (April 2010, 28 pages 1.37Mb) available for free download here.
  
  
• Numerous brochures and publications published by Palliative Care Australia are available for download from their website. Or you can download an Order Form to request free hardcopies.

Further Links

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